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8/7/2026  

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8/7/2026

This marks the 'turning of the page' in my blog here. As I described in the posting just prior to this one. this flip happened back in 2007 as a result of the growing set of entries and the occasion of my first remission. I have something of a 'new' remission story to add here. Not long ago, Jill's neurologist told her that she could probably stop taking her MS medication Avonex without any problems. She hadn't had any new lesions for years, and the new consensus for chronic diseases is that they can be subdued to the point where they won't necessarily be active.

Before I left New York, Dr. Pearse had suggested that I might consider stopping my Lenalidomide (Revlimid) since I also had no real myeloma activity for over ten years (since my transplant, actually). Dr. Kwok confirmed this sentiment and suggested we do another bone-marrow biopsy to check on any low-level cancer activity. We did the biopsy a few weeks ago and... no myeloma activity detected! They're using a several much more sensitive tests to check, and they are all negative! We're still awaiting one final test, but it's expected to be negative too.

So this 'remission flip' also takes place when I am stopping my maintenance chemotherapy. If the cancer comes back, I have some good therapeutic options, including the new CAR-T treatment. I hope I won't need them, though!